CEUs are available for attending the conference. The Institute on Disability and Human Development Community Education Program, University of Illinois at Chicago is approved and licensed to issue CEUs for:
Nursing Home Administrators
Speech Language Pathologists
Required documentation will be available at the registration desk.
Friday, August 6
Participants begin arriving.
3:00 – 8:00 PM Registration Opens
12:00 – 5:30 PM Sibling Leadership Network Board Meeting
6:30 – 7:30 PM Meeting with Facilitators and Volunteers
7:30 – 9:00 PM Informal Reception hosted by Hyatt Regency
Saturday, August 7
7:00 Registration Opens.
All must be seated by 8:00 AM
7:30 HOSPITALITY AND RESOURCE ROOM OPENS
8:00 – 8:45 Welcoming and Opening Ceremony
Procession of volunteers and presenters
Song by Larry Oliveri
Presentation by Emily Perl Kingsley
8:45 – 9:15 What is self-determination and why is it so important?
Tamar Heller, Ph. D. and Tia Nelis
9:15– 10:30 Interactive Plenary Session
BROTHERS AND SISTERS – UNIQUE CONCERNS –
Facilitated by Don Meyer, Director, Sibling Support Project in Seattle, Washington
10:30 – 10:45 Break
10:45 – 11:45 Continuation of Plenary Session
A PANEL OF BROTHERS AND SISTERS
Don Meyer will moderate a panel of young adult and adult brothers and sisters who will discuss life with siblings who have special needs.
All will be covered: the good parts, the not-so-good parts and verything in-between. Along the way, panelists will offer suggestions to parents and providers.
Kathleen Houghton–Somerville, Massachusetts
Mary McHugh–Chatham, New Jersey
Mark Goldberg, J.D.–New York City
Delilah Brewer Picart–Pittsburgh, Pennsylvania
11:45 Presentation by Eileen Garvin
Guest presenter: Chris Burke
Siblings in Australia: Ariella Meltzer
Siblings in Japan: Tomohiro Suwa
1:45 – 2:45 Breakout Sessions
- Supporting our Brothers and Sisters Using Person-Centered Thinking and Planning Tools: Barbara Sapharas (Sibling)
- Families of children with special needs: Issues and restructuring of family roles: Laura Lustig, Ph.D., LMFT (Family)
- Employment of People with Disabilities Robin Wood
- The Facts of Life …and More: What is Meaningful Sexuality Education for Individuals with ID/DD and Why Is It So Important: Leslie Walker-Hirsch, M. Ed. (Family)
2:45 – 3:00 Break
3:00 – 4:00 Breakout Sessions
- When quiet Courage Screams: Proven ideas for services and supports for children and adults who have siblings with special needs: Harriet Redman (Professional).
- Decision-making in a crisis: Perspective of a sibling, self-advocate, and sib-in-law: Nora Handler, Bruce Handler, and Marty Fox (Sibling)
- Challenges for families of persons with developmental disabilities through the Life Cycle—A Clinician’s Perspective: Marc Adelsberg, Ph.D. (Professional)
- How illnesses like Alzhemer’s can add to your creativity and experience of life that can make you stronger. These challenges make you a better person. Challenges expressed in art that have won national awards. Don Axleroad, Alison A Boteler and Charla Boteler.
4:15 – 5:15 The Sibling Leadership Network: Katie Arnold and
Tom Fish, Ph.D.
5:15 – 6:15 Free Time
There will be book signing in/by the resource and hospitality room.
Singer Larry Oliveri
Keynote Speaker: Cheryl Wills NY1 News Anchor
and brother Clarence Wills
Sunday, August 8
8:15-9:15 Breakout sessions
- Doing Activities in the Community with my Sibling – Next Chapter Book Clubs: Tom Fish, Ph.D. (Sibling)
- Alzheimer’s Disease and Down Syndrome: Current Research: Warren B. Zigman, Ph.D. (Professional)
- What Research Tells Us: The Challenges and Benefits for Siblings Across the Life Span: Ann Kaiser, Ph.D. and Cynthia Chambers, Ph.D. and John Kramer, Ph.D.(Professional)
- Sex and the City for Sibs: How Having Siblings with Disabilities Has Impacted Our Choices in Love, Partnership and Starting Families: Emily Holl, MFA, Mark Goldberg, J.D., Clare Ferramosca, and Connie Murray (Sibling)
9:30 – 10:30
- Mom and Dad, Let’s Talk About the Future: Essie Pederson and Tara Kosieniak (Sibling)
- The 12 Steps to managing a relationship with an addict sibling: Carrie Ostrow
- Gaining insight into the Lives of Families That have a Child with “Special Needs”. A Nationwide Study of “Typically Developing” Siblings: Tyler Lipperman, Elyse Blueglass, Morgan Blueglass and Amanda Buonagurio.
- Sib-in-laws: The Partner’s Perspective: Being a good passenger and not a back seat driver. Bruce Handler and Jessica Kramer, Ph.D.
10:45 – 11:45
- Wrap up: What Now? Suggestion for where we go from here.
- Participant Announcements and Sharing
11:45 – Noon Closing Remarks